tag:blogger.com,1999:blog-14649024.post830981718354534348..comments2024-02-13T13:47:56.739-08:00Comments on David McNally - Wiskott Aldrich Syndrome, Bone Marrow Transplant, and Graft-vs-Host Disease: IVIG DayAimeehttp://www.blogger.com/profile/13851001723699650438noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-14649024.post-37771372233528807352008-05-22T20:29:00.000-07:002008-05-22T20:29:00.000-07:00Hi,Try not to take those thoughtless comments to h...Hi,<BR/>Try not to take those thoughtless comments to heart. I think we all have those. I one time was told by someone to remove Baden's raincover from his stroller because we were in doors, and it was warm. I think the words that are etched on my mind were 'don't do that to him, haven't you heard of the bubble boy.' It upset me so much and it happened more than once. As you know, the cover was to protect him. I remember telling the man that he had no idea and I walked away crying. Anyway, what I have learned is that it is not worth worrying about. I do everything I can to make sure that Baden knows that he is a wonderful brave special human being, and that the world (and my life) is so much better because he is here. When Baden was sick I used to sing Elton John's Your Song to him and the words are true for Baden and all little boys with Wiskott 'How wonderful life is, cause you're in the world.'<BR/>Have a good one.<BR/>Joanne.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-14649024.post-83048903445663734742008-05-14T18:37:00.000-07:002008-05-14T18:37:00.000-07:00We get comments about Shimmy still not walking una...We get comments about Shimmy still not walking unaided and people want to know if the chemo did this to him... i have really learnt the hard way that we, as parents, have to realise that we have to go beyond other people's often senseless words..<BR/>David is a gift. He is alive and here, so just enjoy him..<BR/><BR/>BelindaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-14649024.post-27791289336775880562008-05-14T17:47:00.000-07:002008-05-14T17:47:00.000-07:00Socially -- I can still remember all the stupid c...Socially -- I can still remember all the stupid comments we would get regarding Jacob's bruises. I used to wonder if the people even realized that he had feelings. Thinking of you. <BR/><BR/>AmyAnonymousnoreply@blogger.com