Last night Michael read in one of the medical journals about 2 cases of reverse mutation in WAS. This is where the mutation reverses and good cells are produced. The good cells live among the bad. The good cells over-ride the bad, thus, symptoms of WAS disappear. That is a miracle! We pray this miracle will happen (or maybe it's happening right now) to David.
David's complexion still looks good. It's been about 6 days of good looking skin. The place where he cut his lip has a hematoma that keeps filling up with blood and periodically draining. It's just like a blood blister on his gum. It's not serious.
We are learning so much from the journal articles. I wish I had more concentrated time to delve into them. I find myself staying up very late researching and looking for more clues that will help us understand what is happening to David. Thankfully, the children slept in until 8:30 this morning.
We are struggling with the idea of BMT. We take it one day at a time, trying not to worry about tomorrow.
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2 comments:
Hi Aimee,
I've been reading your blog today. I haven't had time to do so since last week. I'm very happy about the positive things you've written, especially all the spiritual things you're learning from this experience. Your faith is tremendous and I believe as you do that God is with you and will show you His Greatness.
I feel your frustration about the doctors wanting to jump into things like BMT. I read about a family in one of the churches of God {on local news} who refused cancer treatments for their daughter. She and their other children were taken away from them because of that!! Later I learned that the girl's cancer could not be found!! I don't know if the children have gone back to the parents yet, but it was a miracle that she was healed. I have fought with doctors for years on minor levels {not like what you're going through} and I know how hard it can be, but if you feel strongly that they aren't doing what you think is best, get a second and even a third opinion. Those treatments and drugs sound like very extreme things to put a baby through. God doesn't want that for David. Getting second and third opinions would buy you some time to see how things go with David before they try to do those treatments. They can't fault you for seeking other opinions. I'll keep praying for David's healing Aimee!!!
You're doing a great job of researching and praying and being the best mom and wife you can be. I'm very impressed by your strength and character through all that you're going through.
Much Love,
Martha
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