The kidney function test (GFR) results are normal. It was a long day. They drew blood, injected a radioactive dye then had us come back every hour for 4 hours. David knocked out in the car on the way home. We both were exhausted.
Stanford uses a product called Endure for handwashing. Here is their standard procedure that lists the type of antiseptics and antimicrobial soaps. They will not give me any or sell it to me, so I'm trying to get them online. I'm also looking for a lumen lock called Statlock, which sticks to David's tummy to keep the lumens from hanging too low.
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Aimee, I used to get the statlocks from the people who delivered Gyasi's dressing change kits. The rep would call me and ask what I needed and I would tell her. She was very good at calling just in time for replenishment. I would also suggest inquiring with the BMT nurses that tend to David for products. Gyasi had the most awesome BMT nurse at CHOA. She was very willing to assist with those little things. She even gave me some of the hospital hand foam they used there. Having it at home and using it before I changed his dressing made life a little less stressful. Try the in home nurse too. I don't think you should have to purchase them separately because your insurance should pay for them since they apart of Davids care. Those statlocks are heaven sent to the extent that they will help prevent them from hanging and david playing with them but they also prove to be quite a nuisance when it comes time to change it.
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