Sunday, May 06, 2007


I'm doing a little better today after talking to the doctors. Thank you for your prayers.

The doctors need a couple of days to consult with each other to come up with a treatment plan. I'm sure we will go home this week, maybe on Wednesday. Please pray the Environmental Mycobacteria is sensitive to the current antibiotics he is on. If it is resistant then he will need a PICC line in his arm so we can administer IV antibiotics at home. Please pray!

They do not want do a lung biopsy! Whew!

They are very happy that he has been fever free for two days! Funny thing is that he was anointed on Friday night and did not get a fever that night or Saturday night.

The hardest things we deal with is giving the meds and having his arms poked for blood draws.

Current meds. This is awful. Brace yourself.

Ciprofloxacin (antibio. for lungs)
Amikacin (antibio. for lungs)
Vancoycin (antibio. for staff infec.)
Prednisolone (for skin GVHD)
Prograf (immunosuppres.)
Clarithroycin (antibio. for lungs)
Septra (antifungal for PCP)

Not to mention the monthly stuff:


1 comment:

Anonymous said...

Hi Aimee,
What a special and impressive little boy. All those meds, shots, and tests and yet he's still cheerful.

I just wanted you to know that we are keeping you, Michael, David and the rest of your family in our prayers.
God bless you,
Lori Lytle