Hi, Everyone!
I have two pieces of good news. First, David got his Hickman Central Line permanently removed today! This will cut down on the risk of infection while he is still on immuno suppressants. He slept through the 10-minute procedure and came off anesthesia with no problems. The only problem is that he immediately got a fever which is common for line infections. Meaning, if the line was infected, then as they pulled it out, the bacteria gets dispersed, called a shower effect. So, we are not going home until at least Sunday if he does not have any more fevers.
Second, his sulfa drug blood test came back negative. There are two steps in the testing process. The next step is to actually give him a small dose of the sulfa drug on Friday morning to see if he is allergic. It would be rare to see a reaction. If there is no reaction he can be put on a daily antibiotic (sulfa based) which will give him better protection from illnesses compared to the current medication he takes.
Big sigh! That's about all I can say. I'm so relieved to have good news today. I will no longer need to care for his Hickman Line which is a huge burden lifted from me and the rest of our family. He'll be allowed to sit in the bath, instead of having to stand. Just think, he'll be able to run through the sprinklers this summer! Slowly but shirley he is living a normal childhood. Smile!
Thank you for keeping us in your prayers. Please pray for his fevers to stop.
-- Aimee, Michael, Adira, Ariella, and especially David
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2 comments:
very interesting blog
I'm always praying for you and am so glad you have been relieved of that duty. I remember feeling the wight lifted off of my shoulders too! Mjulela
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