His labs were ok, I guess. Karen did not mention anything out of the ordinary.
IVIG and Zenopax infusions today. The appt. was 5 hours long (it should have been about 4 hours). We were there 2 hours before any medication started to infuse! They had to poke David 3 times before they found a vein in his arm. The Senara numbing patch worked for one poke and he was brave to withstand the other pokes without numbing. They put us in the "treatment" room which is a double door room for extra sensitive children. The only problem is that they always forget about us, the service is super slow, like I have tons of time to be there! Last time we were there for 3 hours for a 1/2 hour infusion; we missed an important library event and everyone was sad.
I bought a blood pressure cuff but do not know how to use it yet.
I finally bought the probiotic and colostrum that the doctors said was ok to give him.
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2 comments:
Yeah, don't you love those waiting times? We went in for a 30 minute platelet transfusion yesterday and were there from 8:00 AM - 1:30 PM. Praying for y'all!
Aimee, I am still livin the waiting room nightmare! Gyasi gets his counts checked every 3-4 months and I'm there 3 1/2 - 4 hrs. It drives me nuts and at the same time, I am so thankful we dont have to go every other day anymore. It'll get better...stay steadfast because you are doing a fabulous job! Many prayers from the Nettles home!
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