The skin on his hands and feet has pretty much peeled off. Boy was that alarming and pretty painful for him. He has never had hand or feet involvement. When he could not close his hands I got pretty upset because he uses his hands for building many Lego creations. Then when he told me his feet hurt to run, my heart sank because he loves running. Well, he is pretty much back to normal now. He's building, he's drawing, he's running.
Here is a sneak peak at our newest addition Jonathan Judah McNally, born May 16.
9 comments:
Dear Aimee,
Heartiest Congratulation on this cute addition to your family. Thank you for taking the time to share him with all of us.
My Best Wishes to you and to your family and healing prayers and thoughts for David. I hope that his skin continues to improve.
Love,
Sumathi
Dear Aimee, Michael and Family
Congratulations on your newest beautiful addition to your family!Enjoy him and we are glad that David is getting back to himself.
Best wishes
Helen and Niall
So glad David's doing better! Congrats on the new addition! He's adorable!
Congratulations on your new baby. He is really cute! Hope David is feeling better.
Hi Aimee-
Deanna told us about your new addition to your family!
Welcome to Jonathan...what a cutie.
We wish all of you the very best.
With love~
Dale and Joan
Hi, im from brazil and im study about this syndrome and your blog its beautiful, exciting.. its the better font that i found about this syndrome on the internet.
its not so better because i dont understand everything and for this reason my english its not the best, but im here just for say this and give to you a congrats.
excelente e maravilhoso trabalho ("excelent and wonderful job" in portuguese)
kisses
My most heartfelt and excited congratulations Aimee! Wow, what a beautiful and amazing addition to your family. Gods Speed on Davids healing and His Blessings to you all.
Mjulela
from grandpa
babby is cute i pray that he continues to be healthy. David sure hase a cute round face. hope to come over when it is convent for you and family love gp.
Boy, I've been away a while...
CONGRATULATIONS!
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