David had IVIG and Zenopax yesterday. His labs all look great. His rash is not improving though on the new medication called Sirolomis (Rapamune). His blood pressure is still very high because of the steroids. He's been feeling pretty good though. He is enjoying his new room in our new home. We just moved into a large home in a very peaceful area of the Santa Cruz mountains. He enjoyed his vacation at grandma's house this month too. I'll post some pictures soon.
We are going to use the Sirolomis for another 4 weeks. If there is no improvement, we will discontinue it and try something else.
Thank you for your prayers and emails. It's so nice to know there are so many people concerned and praying for David and our family.
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2 comments:
Aggggggh. So sorry to hear that the sirolimus is not working.
Amy
Hi Aimee,
So sorry to hear that Sirolimus has not done the trick as yet. David and your family are in our prayers.
Enjoy your new home and the kids. Looking forward to the pics.
Sumathi
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