+1198 Vision and Learning

We are now entering a realm of David's care that I was hoping never to enter. It's becoming clear that the doctors at Stanford are only interested in medications and operations. They have very, very little interest in the whole child. Honestly, this was clear from David's first diagnosis when they wanted to rush into a bone marrow transplant without first understanding his symptoms. I just wish they took more of a wholistic approach.

Let me give an example. After David's doctors learned he had cataracts, they did nothing except shake their head in acknowledgement. They gave no advice to me, like no nutrition advice and no sunglasses advice. Do they not understand that the eyes need vitamin C and antioxidants?

So, by God's grace last night we had a vision therapist come to my homeschool group meeting. He spoke about vision and learning. I asked him about David's cataracts and previous brain hemorrhage. God opened a new door for me. David will eventually acquire blurry vision. This will effect his reading and learning. Also, he may have vision problems due to the brain hemorrhage. Things David can do so well today, will slowly deteriorate. The reading skills he acquires this year in Kindergarten will get harder, not easier like for most children. There is therapy that will help him to compensate for the everyday activities that will be more difficult to do. He could compensate on his own, like many people do when they have a disability, but that will lead to bad habits. It's best to develop good compensation skills.

This leads me on a new journey. My prayer is that God will hold our hands, continue to open doors, and strengthen David in every possible way. Thank you for your prayers.

-Aimee and especially David