David will be 10 yrs old on June 7th! He still has ongoing health issues which I'll outline here:
Petechiae: He still has petechiae (tiny pin point blood spots) but his platelets are normal. The doctors have no explanation.
VSD: He still has a VSD (Ventricular Septal Defect) hole in his heart. It's about 2mm. As his heart grows, the hole becomes smaller in relation to the heart size. He saw the cardiologist on 3/18/14 and he did not do an echocardiogram. He said there is nothing to worry about. The size of the VSD will not affect his growth.
Skin GVHD: His skin GVHD still flares up when he's in the sun. It's been 2 yrs since his skin GVHD resolved but we still have to take precautions like sun screen, sun hats, and shade. If he has a flare up, we use Hydrocortisone 2.5% topical ointment and that seems to work well.
Growth:
IGF3 Binding Protein - 4.4 - normal
IGF1 Insulin-like Growth FActor - 130 - normal
Celiac Disease Panel - TTG IgA Antibody - 1.2 - normal
- Deamidated liadin ABS, IGA - 2.2 - normal
- Immunoglobulin A (IgA) - 464 - HIGH - not sure why, Dr. Suchet has not responded.
Thyroid:
He's still on 50mcg o Levothyroxine for Hashimoto's Thyroiditis.
T4FREE - 1.06 - normal
TSH - 1.24 - normal
Weight:
59 lbs
Blood Pressure:
98/63 - very stable
Height:
3 feet, 3 inches on 3/18/12 - Since October 2012 he's grown 3.8 inches. His growth has slowed down but he's still trending upward. He's still not on the average growth chart. There are no signs of puberty which means his growth plates should still be open, giving him more time to grow. We HOPE his growth plates will stay open until he's about 14 yrs old. If that is the case, he's estimated to be 5'8" tall. If they close earlier than 14 yrs old, est. height is 5'5".
Development:
I'm so proud of my son! He's had a great school year! He's reading now. He enjoys science and PE too. He likes to be read to, so we've read several chapter books to him this year.
Mountain Born by Elizabeth Yates,
Henry Huggins by Beverly Cleary,
The Year of Miss Agnes by Kirkpatrick Hill,
Mrs. Piggle-Wiggle by Betty MacDonald,
Owls in the Family by Farley Mowat, and
Homer Price by Robert McCloskey. Right now, we are reading
The Wheel on the School.
He really likes
https://diy.org/ and is working on several badges.
Here are a few photos of our recent trips:
IRELAND - March 2014
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Departing Ireland |
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Ballyquinn Beach, Ireland |
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Ballyquinn Beach, Ireland |
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Blarney Castle |
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Blarney Castle |
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Blarney Castle |
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Blarney Castle |
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Rock of Cashel |
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David likes to color and do activity books |
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Catching air while he can while the train was empty. |
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National Maritime Museum in Dun Laoghaire, Ireland |
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National Maritime Museum in Dun Laoghaire, Ireland
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TRIP TO DISNEYLAND and SOUTHERN CALIFORNIA - Dec 2013
SCOTLAND - October 2013