Wednesday, April 02, 2008

Wednesday at NIH

Today he saw the eye doctor. Have you ever taken a 3 yr old to the eye doctor? Reading the images was fun and he has 20/20 eye sight. The hard part was the yellow eye drops, then shinning a blue light to see if there is any stain. More good news, there was no stain, so there is no eye GVHD. However, I don't think the doctor put enough of the yellow drops in his eyes. I don't think he has any problems with dry eyes, so I was satisfied. It was a difficult test for David.

We had a consultation with Dr. Candotti, the WAS specialist. He handed me a graph showing that David now produces 100% Wiskott Aldrich cells, so he no longer has WAS.

Next, we went to Rehabilitation. I filled out a survey asking questions about his mobility and emotions (like depression and happiness). Dr. Li measured his elbow, wrist, ankle, and knee flexibility. He has 100% mobility. She told me David is the youngest they have in their GVHD study. The study is about 3-4 years old. She also asked me questions about his endurance. He does not have any problems in this area of life. More good news.

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