I have a phone in the room: 650-470-6073
Address (we will be here until the beginning of November):
Ronald McDonald House
Resident: David McNally
Room #G105
520 Sand Hill Road
Palo Alto, CA 94304
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My son had a mild common mutation of Wiskott Aldrich Syndrome (WAS). We decided, after 2 years of research, to not do the BMT but one month after our decision, he had a brain hemorrhage from jumping on a trampoline. His hemorrhage was treated with platelets but we were quickly encouraged to do the BMT. When he was two yrs old, he had a BMT with a 10/10 unrelated adult donor. We hope our research will help other families struggling with WAS. Feel free to email me: aimeemcnally@gmail.com
1 comment:
Hi Aimee,
I just read your e-mail and printed out the last few days of the blog to put on the bulletin board at church.
Everyone will be so very pleased with David's progress!
Take Care! Happy Sabbath!
Love, Sue Crow
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