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My son had a mild common mutation of Wiskott Aldrich Syndrome (WAS). We decided, after 2 years of research, to not do the BMT but one month after our decision, he had a brain hemorrhage from jumping on a trampoline. His hemorrhage was treated with platelets but we were quickly encouraged to do the BMT. When he was two yrs old, he had a BMT with a 10/10 unrelated adult donor. We hope our research will help other families struggling with WAS. Feel free to email me: aimeemcnally@gmail.com
2 comments:
God is so good! Praise Him for butterscotch syrup!
:)Amy
Hello,
Just wanted to say thanks for visiting Baden's webpage.
Also, since I just got back from Disney and in regards to your +201 Butterscotch comment, using the words of wisdom from Mary Poppins, 'a spoonful of sugar helps the medicine go down in the most delightful way!' (I think butterscotch is just like sugar!!!). Hang in there.
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